by JaneJ » 09 Apr 2015, 15:44
Being a family carer is so isolating.
Family tends to be supportive to start with then get bored and worriedyou want them to help out more so sstay away. Not every family i know but it happens. Friends drift as you are not available. In my case they stopped visiting as Lee is in the lounge nad as he doesn't wash often i was too embarrassed to invite people in due to the smell.
The nights are lonely if you have to be up, there is no one to talk too and if it's a spouse you lose the husband/wife relationship so even having a cuddle isn't possible so you feel physically lonely.
Then there is sexy.
I am 46 and have cared for Lee for over 12 years. We haven't been intimate since 2012 and it was an annual event before that so I do feel lonely in that area too as I don't have the illness and am a physical woman. So i feel cheated fro that also.
Hope i haven't been too open! Lol