Carers Chill4us | Carers message board

Nystagmus: Looking for answers to eye disorders
By Philippa Roxby

Health reporter, BBC News

Six months after his operation Thomas has had one operation to improve his vision


Nicola Oates always thought her son Thomas's clumsiness as a baby was normal.

As he got older, it became more problematic. He would trip over anything lying on the floor and he started falling behind at school. He also developed a habit of turning his head to the right, and pointing his chin downwards, when looking at something


"That was very odd," says Nicola, who lives in the Midlands. "He looks normal most of the time but when he focused his eyes he wanted to look out of the top of his head.

"When he was walking he'd end up bumping into walls, chairs, people... everything."

It was Thomas's way of "stopping his eyes swinging" she explains, a symptom of an incurable eye movement disorder called nystagmus.

Referred to as "wobbly eye" because it causes uncontrolled eye movements, nystagmus also creates lots of problems with vision
read more
http://www.bbc.co.uk/news/health-25669601

go90

Nystagmus is a terrible eye condition, my daughter developed this jerky eye movement caused by the MS, she use to say the movement of a car caused it to be worse so closed her eyes when travelling.